Tuesday 12 February 2013

Mid Staffs ; sameold, sameold? A case for ‘PatientAdvisor’ perhaps?



 

I’ve had a week or so to look at the Francis report, and I continue to light upon  fresh  aspects it reveals of what was a tragedy  for the many people who died – probably prematurely  and in excessive numbers – and the families who have been left to mourn them,  as well as the organisational disaster that will keep people  in discussion of  it for years.

The report –as you’d expect from a top QC – is in many places forensically detailed and  only begins to wobble when we get on to the recommendations – an awful lot of them . I tend to the view that any report that puts forward  290 recommendations has picked up the shot  gun rather than the scalpel.

And if any government [regardless of party ]  did implement them  ? You could make a good case that if implemented in full ,  proposals for more regulation and sanctions might even reinforce the ‘evade the blame ‘ culture that permeates such large complex bodies as hospitals , universities and government at all levels

The report also refers back to the legacy of earlier reports  into hospital disasters. Francis reminds us that the report into Bristol United Hospitals' Trust had many mentions of that useful old friend of professional and organisational failure: ‘hindsight ‘ . Francis ruefully  observes that in the evidence transcript for Mid Staffs , there are 123 instances of  ‘hindsight’ and 378 ‘with the benefit of hindsight ‘.

His reference to the Bristol enquiry – where it was determined that admirably enthusiastic surgeons were trying paediatric surgery beyond their reach and kids were dying – made me think about trends in such hospital  disasters and whether they come in different types  .

And there are  trends ; not all hospital disasters /scandals are the same , though they often have one feature in common ; more on that below.

Some such disasters  - I think disproportionately many – emerge from within the still  pretty closed world of care for people with mental health or learning difficulties . The Ely hospital scandal in Cardiff back in the 1960’s ; the Winterbourne assaults filmed for BBC Panorama last year . These occurred where vulnerable people were in a closed institution , in some instances people who couldn’t even express the reality of what was happening to them . Even worse , you suspect in some cases they thought that kind of treatment was normal practice.

Some scandals clearly arise from the [commendable?] ambition of some medics to pioneer new developments, developments either beneficial to them  ; their hospital or for medical science generally . Events  at Bristol and at Alder Hey [ where organs were stripped from dead infants and stored for research ] fall into that category .

No less ghastly , but probably unclassifiable ,  is  the occasional solo deviancy  of people such as Harold Shipman and the other medical staff who have exploited their position to kill or harm patients. We shall probably never know what motivated people such as these.

I think it’s interesting that  if we compare the big hospital failures such as Ely, Bristol Alder Hey, and Mid Staffs  there are common factors as well as differences, and the two that seem critical to me reflect both a changing set of society values and changing technologies .

When I looked back at the Ely Report [ 1969 ] I was surprised to find that the enquiry reported the balance of external [ family and carer ] comment on the incidents examined in various wards of Ely Hospital was generally positive – by a facto of about 5:1 as far as I can see. In Bristol, even at the GMC hearings , there were parents and family willing to publicly support the actions of surgical teams  who were considered on empirical evidence to be deficient in skills for the procedures they carried out . Even Harold Shipman had patients and patients relatives willing to provide positive comment on his medical care.

Such familial support for deficient, even neglectful and potentially criminal  practice , seems to be entirely missing at Winterbourne and in Mid Staffs. That may be because  of overwhelming evidence or it may signal the complete collapse of patient deference for medical authority . Either is significant .

The other factor that is critical in achieving comfort and assurance on the quality of health care is information . As Robert Francis observes in his summary  : “Public should  be able to compare relative performance “.

It’s worth considering  some fundamental aspects  of accessing and using such  data  :

  • the starting point for the growing anxiety about Mid Staffs was the publication of atypical death rates at MS by Dr Foster , a private business  ;
  • when such data was made available to decision makers in the hospital they looked the other way ; challenged the data methodology and commissioned academic research to challenge the methodology & conclusions that might be inferred from the data;
  • with the benefit of that famous hindsight, or with ‘real time ‘  access to data on patient death certificates in the GP practice where Shipman worked,  someone might have noticed that over an extended period Shipman had more patients die than any of his colleagues .

Actually health service data remains very hard to access – whether in England and Wales , or in Scotland [ where we have our own hospital problems currently subject to scrutiny]. Data is  getting better , but it still remains occasionally ropey; hard to analyse and to derive any sound  conclusions from.

I’m coming round to the view that as well as all the necessary statutory initiatives, maybe, just maybe there’s a place for somebody to launch ‘Patient Advisor’.

 After all ,  a lot of people put a lot of energies into Trip Advisor, and other people pay attention to it. Not as the only word , leave alone the last word , but as a source of information they use for  a much less important decision than people entering hospital make.

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