Monday 20 May 2013

Cancer Sufferers and Political Panic in Scotland – how not to make public policy?


 

 

Don’t ever say that governments can’t move quickly when it suits them to do so – usually under the lash of potentially embarrassing public opinion .

We had a marvellous example of that in Scotland this weekend [ or , possibly even today , Monday 20th May. ]

For the past few years , as an ever wider array of cancer addressing pharmaceuticals has come on stream , the expert mechanisms we have for assessing the efficacy of such drugs has tested the decision making processes of government .

In both England & Wales , and here in Scotland , we have expert bodies charged with assessing the clinical efficacy and the ‘value for money ‘ of  new and often highly specialised treatments . South of the Border it’s NICE; in Scotland the Scottish Medicines Consortium . Understandably these bodies take time to consider possible treatments – time which those suffering with later stage aggressive cancers don’t have .

As a consequence both the UK and Scottish governments have cut corners in order to override – or accelerate past – the procedures they themselves have set up . In England there is a short term Cancer Drugs Fund , here in Scotland the Cabinet Secretary for Health recently  made money available to support a similar sort of ad hoc provision .

Despite that attempt to catch-up in Scotland it seems pretty clear that a number of medics [ reported in the media last week ] ; patients organisations and some patients think that from their point of view Scotland lags . Last week at First Ministers Questions in  Holyrood, Mr Salmond was ambushed by the presence in the gallery of a bowel cancer patient who was  considering moving to Newcastle to get appropriate medecines for her condition on the NHS rather than paying for them herself here in Scotland .  

Following the spectacular Jolie coverage of the week of 13th  …the story runs thus:

Wk. 13th NICE in England announce plans to make breast cancer genetic testing available from next month

19th When this was covered  in the Scottish Sunday papers ‘….no  comment was available from  the Scottish government…’

19th /20th Overnight:  Breakthrough Brest Cancer ‘..hopes that Scotland will follow this step in due course…’

20th May ‘ Due course ‘  turns out to be later the  morning of the 20th ,  when the Cabinet Secretary for Health announced ‘….it had been agreed in April to extend the testing in line with the new NICE guidelines south of the border….’

Commendable if you’re a cancer sufferer , but when decisions in this complex policy area appear to be arrived at in such haste you wonder just what is going on .